MISSION STATEMENT

100% of monies raised through donations go directly into brain tumour research

The Sydney Neuro-Oncology Group (SNOG) is a charitable organisation that aims to improve the management of brain tumours through targeted research, information sharing, constant scrutiny of treatment options and through education and ongoing support for patients and their families.

The Sydney Neuro-Oncology Group is a not-for-profit organisation administered by a Board of Directors. The Group is funded by generous donations from the public. All donations to the Group are used to support research, education and patient and carer support. The Group is based in the Northern Sydney Central Coast Area Health Service and includes patients throughout New South Wales, Australasia and South East Asia.

OUR AIM:

The Sydney Neuro-Oncology Group aims to enhance the management of brain tumours through research along with patient and carer support. A multidisciplinary approach is taken to improve decision making and treatment processes involved with each individual diagnosis.

The aim of the Sydney Neuro-Oncology Group is to collect data on the natural history and management of brain tumours, specifically to scrutinise the outcomes of treatment protocols for these particular tumours. The Sydney Neuro-Oncology Group works with a comprehensive database that allows the assessment of the multiple variables involved in overall management of brain tumours. The Group assists in data collection for current trial drugs believed to be beneficial to brain tumour management.

The Sydney Neuro-Oncology Group recognises the need for continuous support for patients diagnosed with brain tumours and their families. The Group has developed a thorough education package that provides vital information about brain tumours and patient and carer support associations. The Group has supported the development of a Brain Tumour Support Group. SNOG is also proud to employ a Neuro-Oncology Nurse Care Coordinator to assist in managing each individual patient throughout the course of their treatment. SNOG also funds the Chief researcher in the brain tumour research lab at The Kolling Institute of Medical Research, as well as past and current PhD students.

SNOG is involved in various research projects including current drug and radiotherapy trials, translational research in our lab and the new innovative GBM trial, GBM AGILE.

In collaboration with The Kolling Institute of Medical Research, the Group have been able to establish a brain tumour tissue bank. Brain Tumour Tissue samples are collected and exposed to genetic analysis. Since starting the bank, we have collected over 1500 tumour samples. The long-term goal is to identify a genetic molecular description that will improve treatments and increase survival time of patients with brain tumours. This vital research is funded by donations made to the Sydney Neuro-Oncology Group.

Many of the results achieved by the multidisciplinary team working with The Sydney Neuro-Oncology Group have been published in numerous international journals. This information can be viewed in the research and resources tab of our website

100% of monies raised through donations go directly into brain tumour research,
education and ongoing support for patients and families.

  • Any administrative costs involved in running SNOG are financed by an external source. No percentage of donations is used.
  • The Sydney Neuro-Oncology Group is a not-for-profit organisation.
  • All donations $2.00 or more are fully tax deductible.
  • The Sydney Neuro-Oncology Group in collaboration with The Kolling Institute of Medical Research would like to acknowledge the contribution that patients and families have made to further medical knowledge and the treatment of this disease.
  • Sydney Neuro-Oncology Group has treated over 900 patients with newly diagnosed malignant brain tumours since 2005. This number continues to grow.
  • Donations can be made to SNOG via our website or by emailing snog@snog.org.au for details

 

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